No, it is not hopeless. It is a rough road, quite bumpy at times but far from hopeless. If you feel alone, tell us and the special bond you have with this group will reach out to you with support. We are all in this together, Never forget that we acknowledge our disease and are willing to talk about it so we are not alone. We are brothers and sisters together mindful of the life we lead and the life we now lead. It is our opportunity to bring together our family, our friends and the medical professionals, dedicated to our wellbeing. It is our responsibility to work doubly hard throughout our illness to shed light on this disease so others that may follow will have access to medical; protocols that arrest these symptoms.
Give em hell! Dan My BUCKET LIST I have been told to go do things I want to do now not later then I’m told no you cannot do that it could kill you. So i did not go zip lining because my reactions are too slow. I wanted to parachute from a plane but did not because the doctor felt it was too dangerous I would be dead before I hit the ground. When you have a doctor tell you this stuff you listen. I did and followed their instructions. Now I am of a different mind to follow my heart and do the things I have put off for much too long. I had these items on my bucket list. #1, I did fly a plane and so glad I did. What an experience. If I had started earlier in life I would have my pilots license. I then threw my bucket list away. I went back to doing the things I could do and ignore the things I cannot do. So I am going to create a new bucket list. This time I thought more about the things i need to do. Not so much jumping from an airplane with a parachute but getting right with God. That is going to be my Number One objective. To do that I have a lot of work ahead of me. Number Two, I am going to track down old friends and attempt to reignite friendships. I want to have a small reunion. That is already becoming a very challenging job. Lucky for me my long time best friend Floyd Gills is helping me. I am beginning to believe he is a super sleuth. He has found several old friends for me. I was completely lost and he found them. Number Three, I want to go on a cruise. Never been on one but I am going to do it.I don't even care where it is going but I will be on board. Number Four, I am going to take my children and grandchildren to Disney World. Number Five, I am going to Hawaii, I always wanted to go there, and I am going to do it. Number Six, I am going to Ireland. Come hell or high water Ireland I will step foot on your island one more time. Number Seven, I am going to finish and publish the history of the Gallivan family. I have been working on it for years. It is time to finish it. Number Eight, I must go White Water Rafting, and it was so much fun I cannot believe I did not go back a second, third and more times than that. Number Nine, I must go to the Baseball Hall of Fame. Number Ten, I am going to jump out of that dam plane even if it kills me. I will make the last on the list just in case the doctor is right. If you have some other ideas i would like to hear them. There is always a need to write your thoughts and Ideas Well I was just having a little fun. You see I was at the Good Shepard Catholic Cemetery last Saturday and purchased two plots. I had the opportunity to walk around and pick my eternal resting place. First I had to have proof that I would not be evicted after 100 years. The salesman assured me it was standard practice to allowed corpses to continue to remain after 100 years. Okay i bought it. I insisted on having a final walk through added into the contractual agreement. He wrote it in but he did ask if i was not available could someone stand in for me. So I agreed it would probably be a good idea. Then I wanted to know if they had a Termite Bond. He said no and suggested i purchase a metal casket and a sealed vault. So I bought the sealed vault. Heck with termites. Then I had a question about an underground water spring. You know the What If question. He told me he was not familiar with that amenity but would look into it. (WHAT!) Then I asked for a written guarantee that a tree would not be planted on top of my resting place. He said the trees were already planted, so no need for anything in writing. Okay... Then I told him I did not sleep well lying on my back and wondered if I could be buried laying on my side. He said sure just work it out with the funeral director. I then reminded him I would not have a voice in the matter. He again said to leave a note for the director. So i need to remind myself to write a note to the funeral director before I lose my voice. It doesn't seem fair, he could easily write a note on the contract. Oh well! So I asked him to explain the amenities. You know this is a very costly endeavor and I want it to last a while. He just stared at me. I said look, do you roll down the covers, do you put a mint on the pillow. Do you have WiFi? Where is the electrical outlet. What if I get thirsty? Are we allowed to fly around if we get bored? Once again he said he would look into it and get back to me. Hmm mm... I was running out of time...I mean i have another appointment. So i said what the heck where do I sign. So I signed. But I did insist he send me the answers. Finally I went back outside and visited the area I was purchasing. I decided what the heck and laid down on the grass to check out the sky line. I moved around a bit and eventually wound up on my side. I was right it is more comfortable. (Note to self: Remember to write the note to the funeral director). Well anyway I took some heat over the pictures. Yeah it was a bit extreme but you what...I had fun doing it. Swede Talking....
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